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welcome to empowering, educating & supporting patients since 2005 we warmly welcome you to the uk & ireland patient organisation for adults & children living with a parathyroid disorder. if you have any type of rare hypoparathyroidism, psuedohypoparathyroidism, casr or the more common primary hyperparathyroidism we're here to help you to understand your condition and improve your quality of life. read more about how we help here and join us here to access our support group. we look forward to meeting you. it's nearly world hypopara day! we're holding the annual facebook campaign in the world hypopara patient group on june 1st. last year, hypopara patients from 20 countries all joined in the fun and it was a very emotional day! this year, as blue is the colour of our awareness day logo, all you have to do is wear something blue (did we say clothes?!) and post your selfie. check out the world awareness day website to see how to get involved and to read about events around the world. buy your beautiful enamel world logo badge here (it's blue!) sandocal - temporarily out of stock the manufacturers of sandocal, glaxo smith kline, say that there are currently 'availability issues ' with all sandocal tablets and they will be out of stock until 10th may. they warn that it may take some weeks after that date until it is back in the chemists. we recommend to switching to ad cal, a popular calcium supplement which is not effervescent and does not contain aspartame. ad cal tablets: each 1500mg chewable tablet contains: 1500mg calcium carbonate (equivalent to 600mg of elemental calcium). excipients: xylitol, polydextrose, pre-gelatinised starch, sodium saccharin, magnesium stearate, fruit flavour (contains propylene glycol and maltodextrin). sandocal tablets: each effervescent tablet of 1000 mg contains: 2263 mg of calcium lactate gluconate and 1750 mg of calcium carbonate (equivalent to 1000 mg of calcium). excipients: 3323mg of citric acid anhydrous (fine granulate), 30mg of aspartame (e 951), 500 mg of sodium hydrogen carbonate, 30 mg of orange flavour powder (containing sorbitol (e 420) and dextrose). international survey on hypoparathyroidism. thank you to the patients and carers who took part in the international survey on the burden of illness among patients with hypoparathyroidism. the interim abstract and poster will be presented at the european society of endocrinology annual conference, the ece2018, in barcelona in may. not seen the uk 'quality of life' survey results yet? see below... video on latest stem cell research watch the excellent video that consultant surgeon sebastain aspniall and his team at newcastle university have made to explain parathyroid stem cell research and why it is needed. click here to watch the video 21st november 2017 shire 'quality of life' report out now we are delighted to bring you the results of the 'living with chronic hypoparathyroidism' survey which was conducted by shire, in collaboration with , on patients with this rare condition. the report sets out for the first time the extent of the hypopara patient experience in the uk. findings describe daily challenges ranging from 'the impact the condition has on patients' ability to lead a normal life - to work, drive and socialise - to the frequency with which their condition causes them to make an unplanned stay in hospital, or a trip to a&e.' the report is now available in pdf to download here . to order hard copies please click here to send an email. primary hyperparathyroidism leaflet wins bma award we are delighted to announce that our new patient information leaflet about primary hyperparathyroidism won 'highly commended' at the bma patient information awards in september 2017. ' facebook support groups you can be sure of a warm welcome when you join our parathyroid family online. we offer friendly advice and support to all our uk members in our group and hyperpara uk group . open all hours! please make sure you register on this website first. we also run the hypopara europe network group and the world hypopara patient group for both uk and non uk residents. each support group also has a linked facebook page where information and news updates are posted - please 'like' to keep updated. don't forget the members pages here on our website too! 'what is living with hypopara like?' this is the question we get asked most often and its not an easy one to answer. any rare, long term condition takes some getting used to and, in hypopara, the need to manage calcium levels can be a challenge. imagine a diabetic without a home tester or insulin - we don't yet have replacement hormone or home testers - but we're working on it. hypopara is an individual condition so everyone experiences it differently; symptoms may be mild in some people yet severe in others. there may be swings as levels fluctuate in response to factors such as exercise, diet, infection, stress and the menstrual cycle so adjustments in medication are occasionally needed, along with regular blood tests. some people have very stable calcium levels while others don't but once medication is properly adjusted, most people are able to lead a normal life. there is a lot you can do to help yourself too - read more here listen to emma's radio interview here read our collection of patients stories about 'living with hypopara' , pregnancy and hypopara', and casr click here now there are some real answers to that question, complete with evidence. read 'living with chronic hypoparathyroidism', the new 'quality of life' report from shire uk, just (november 2017). are you or your family affected by a parathyroid condition? are you a doctor, scientist or student? whatever your interest we aim to : provide support and a place of contact for our members via our forum and telelphone helpline, newsletters and regional groups provide information and education via our website and leaflets for patients & health professionals raise awareness about hypopara to the medical world and the wider public campaign for better treatment and standardised care promote and assist in new research contact us: if you have any questions about parathyroid matters or about that haven't been answered on the website or if you have any suggestions or comments about the site please get in touch . get involved: is run entirely by volunteers and our membership is free. we need your support to help us help you and others like you. if you’d like to enable us to continue our activities in research, awareness, education and support please click here to find out more. please join us: raising interest in research into rare conditions is hard but the more members we have the more researchers are interested - and the louder our voice. free membership of gives you entry to our online forum and private facebook group (uk members only) and you will recieve trial & research updates and biannual newsletters, as well as ongoing support and advice. just click the 'join us free' button above to register. is a national voluntary organisation and is endorsed by the british thyroid association , the british association of endocrine and thyroid surgeons and the society for endocrinology . we are a member of genetic alliance uk , rare disease uk , national voices and thyroid cancer alliance is the operating name of hypoparathyroidism uk, a small charity recognised by hmrc for tax purposes © 2005-2015 welcome to about meet the team medical advisors annual report contact us privacy policy join and help our voice be heard. membership is free and gives you access to our online forums, telephone helpline, local groups, resources, newsletters. endorsed by: british medical association british thyroid association british association of endocrine & thyroid surgeons members of: we are very grateful to be supported by : art work by whip sophie burrows william de wilde photos from top | cookie policy | privacy | copyright | welcome to about meet the team medical

URL analysis for hpth.org.uk

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encore.wellcome.ac.uk
raredisease.org.uk
nationalvoices.org.uk
geneticalliance.org.uk
baets.org.uk
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Whois Information

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Domain name:
hpth.org.uk

Registrant:
Good Imprint

Registrant type:
UK Sole Trader

Registrant's address:
19 Southlands
East Grinstead
West Sussex
RH19 4DB
United Kingdom

Data validation:
Nominet was not able to match the registrant's name and/or address against a 3rd party source on 23-Jun-2014

Registrar:
123-Reg Limited t/a 123-reg [Tag = 123-REG]
URL: http://www.123-reg.co.uk

Relevant dates:
Registered on: 13-Jun-2006
Expiry date: 13-Jun-2019
Last updated: 07-Jun-2017

Registration status:
Registered until expiry date.

Name servers:
ns1.goodimprint.org.uk 89.145.79.10
ns2.goodimprint.org.uk 89.145.79.11

WHOIS lookup made at 06:06:29 14-Oct-2017

--
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:

Copyright Nominet UK 1996 - 2017.

You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
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or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER uk.whois-servers.net

  ARGS hpth.org.uk

  PORT 43

  TYPE domain

OWNER

  ORGANIZATION Good Imprint

TYPE
UK Sole Trader

ADDRESS
19 Southlands
East Grinstead
West Sussex
RH19 4DB
United Kingdom
Data validation:
Nominet was not able to match the registrant's name and/or address against a 3rd party source on 23-Jun-2014

DOMAIN

  SPONSOR 123-Reg Limited t/a 123-reg [Tag = 123-REG]

  CREATED 2006-06-13

  CHANGED 2017-06-07

STATUS
Registered until expiry date.

NSERVER

  NS1.GOODIMPRINT.ORG.UK 89.145.79.10

  NS2.GOODIMPRINT.ORG.UK 89.145.79.11

  NAME hpth.org.uk

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2017.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED yes

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